Friday, August 3, 2012

Scarlett June: August 1, 2012

When I went in this morning, Cindi, the Occupational Therapist, was working on Scarlett's range of motion. She was able to completely stretch out Scarlett's hand after working on it for a few minutes. It always goes back to it's original position, but hopefully with time, it will improve and become less tight.


They have also been giving Scarlett Albuteral treatments every few hours and CPT along with that to break up the mucous in her lungs.

Her breathing has been improving little by little every day. We are so happy to see that! They moved her oxygen down to 45% and her O2 saturation levels were in the upper 90's.

They also started her milk feedings again. 1cc every hour and move it up 1 more cc every 12 hours.

And Cindi wanted to stretch Scarlett's neck today, so they moved her onto her tummy. She loved that!




I was so happy to see Scarlett doing better that I left the hospital in high spirits.


Later I called the hospital at 5pm, and her nurse, Ali, said she was still doing well, but she had residual in her stomach again. Luckily it wasn't dark brown like the other day, but clear. She shouldn't have any residual in her stomach, so we hope that will clear up soon. 

Later on tonight, when Jon and I went to see her, we saw these two little stuffed animals getting friendly with each other. I think they just accidentally got moved into that position while the nurses were moving things around.  It was a funny sight to see!






Lately, it feels like Jon and I are slowly waking from this bad dream were in. We are realizing that the things that are wrong with Scarlett, may never go away- although it is still too soon to tell. She may never be able to move her muscles very well. She may never be able to suck or swallow and she may need a trach to help her breathe.
But even though she has all these problems, she is still perfect to me. Her sweet little face has hope in it, her eyes have determination in them and her tiny fingers grasp on to mine reassuring me that she will be okay.

And that is how Jon and I feel right now. That Scarlett will be okay, even though we don't know what her future holds. We have to keep optimistic for her, because what else can we do? We can't give up hope.