Yesterday was our last time visiting Scarlett at the Davis NICU. We will really miss everyone there, but know that Primary Children's is where Scarlett needs to be. The neurologist that looked at her today said he is not so sure she has a neuromuscular disorder. They decided to do another MRI today because he is suspicious she may have something wrong in her brain, but still possibly have a muscular problem as well. They are also sending out a metabolic test to see if she is metabolizing glucose.
And you can notice in this picture below that she has her breathing tube back in. Two nights ago, when we went to see her, we immediately realized that her breathing had gotten worse throughout the day and so we were all in agreement that she needed to be intibated again. Bobby, the respiratory therapist said the secretions in her airway just got too thick and they couldn't suction them out without getting way down into her lungs. So the BIG binkie (as we describe it to our kids) went back in. Even though I hated seeing that thing again, I am just so glad she is breathing more calmly and maybe later down the road we can try extibating again.
Our last night at Davis was nice- once she was breathing steadily and more relaxed. Jon held her and I sat and watched as she fell asleep.
In the morning, my mom came down to see Scarlett one last time before the transfer and then she watched our older kids so Jon and I could be there during the transfer.
But before they left, the kids got to see Scarlett one last time.
Here she is in her limousine! She was pretty cozy in there.
And here we are at Primary Children's. I have a feeling this place is going to become very familiar to us.
And here she is in her new bed. She was pretty worn out yesterday after that big road trip, but not too worn out to take a little peak at her new surroundings.
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